When our son was born, it was the happiest moment of our lives. Our baby boy, our first child, had brought so much joy into our world. But just 41 days after his birth, everything changed. We noticed strange symptoms—small balls forming under his skin, his skin color changing, and the most frightening of all, blood in his stool and nose. As parents, there is no greater fear than seeing your child in pain, and we were left scared, wondering what was happening to our baby boy.

The doctors soon told us that he had a rare condition ‘Wiskott Aldrich Syndrome’—something we had never heard of before. They said it affects how his blood works and his ability to fight infections. From that moment, our lives revolved around making sure he received the care he needed.

There have been so many hospital visits, countless medicines, and 4-5 blood transfusions. Each time we visit the hospital, it breaks our hearts a little more. But our little boy has been so brave, much stronger than we ever could have imagined a two-year-old could be.

“We just want him to grow up and play like every other child,” my wife often says with tears in her eyes. It’s a simple dream, but it means everything to us. Seeing him in pain is the hardest thing we’ve ever had to face, but he never gives up, and neither will we.

The doctors have told us that his best chance for a full recovery is a bone marrow transplant- something that can help his body become stronger and heal from within. It’s a complicated process, but it’s a ray of hope we are holding on to tightly. I’ve been told that I can be the donor for the treatment, and knowing that I can play a part in helping my son get better gives me strength.

I work as a laborer, earning Rs 6,000/- a month. My wife stays home to care for him because his condition requires constant attention. It hasn’t been easy, but we are doing everything we can for our little boy. Every moment we spend together is precious, and we dream of the day when he won’t need frequent hospital visits and can simply enjoy being a child.

“We just want to see him healthy and playing with other kids,” my wife says with hope in her voice. That’s all we dream of for our son—a happy, healthy childhood where he can laugh, run, and play without worry.

With the kindness and support of others, we know this dream can come true. Your help can bring us closer to seeing him live a life free from pain and full of joy. Thank you for believing in our little boy and for giving him the chance to grow up strong and full of life. We hold onto hope, knowing that brighter days are ahead, thanks to the compassion of those who care.
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.

Thank you

Warm Regards.
Little Heart Foundation

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